When my youngest daughter was 1 day old, they noticed her oxygen saturation was low on the newborn screening. Needless to say she went to 3 hospitals in about 12 hours. We were called to UT to meet with a cardiologist. He told us she had HLHS. Scared doesn't even begin to describe the emotions. She had her first surgery at 6 days old. Spent about 7 months at Vandy back in 2015. She's now 4, has had 3 open heart surgeries, pacemaker, numerous cath procedures, mainly fed by gtube which has been 3 operations, among other minor procedures. But by the grace of God she's still here, sassy, and smart. I worry a lot about how her mind may be affected by all the procedures and being put under. The pic I attached is old, but this is a Vols site.