The Leukemia came Back Nation

#51
#51
So so sad to hear that you guys have more battling to do, and so soon after a break. But one thing that's been made clear on this board is that you're a good man, a good husband and a good father, and she's lucky to have you marching alongside her into that good fight. And you've all got a lot of people you've never met backing you up with thoughts, prayers and support. I'll keep sending good thoughts your way.
 
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#53
#53
dduncan4163 said:
Brother I'm so sorry. If you want to talk I will gladly PM you my number and that goes for anyone else here too. I want to help anyway I can
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Thanks, bro, we're OK for now. She has 6/mos monitoring visits now after a series of tri-monthly monitoring. Love your offer to talk but she prefers to keep it strictly a family matter so got to respect that. I'm 100% positive I don't have to advise you but on this but give your gal lots of loving, encouragement, and those little things that uplifts her spirit and fight. I kept telling my wife she'd be OK because that dayum cancer just didn't know who it was messing with. Made her snarl and visualize beating the heck out of it. Really hope your gal does the same.
 
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#54
#54
I know how you feel DD and know what you are going through but she can beat it. Everybody reacts differently to treatments and the worst thing you can do is to Google diagnose. I have been guilty of that myself. My wife is currently undergoing 5 days of chemo treatments a week every three weeks for the last 4 months. I only get to see her about once a month. She begins radiation next week. It sucks; cancer sucks but they have really improved the way treatments are administered and their success rates. I hope and pray that your wife finds heeling. I hope you find peace as well. I haven't found mine yet but I believe I will someday.
 
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#55
#55
WoodsmanVol said:
Thanks, bro, we're OK for now. She has 6/mos monitoring visits now after a series of tri-monthly monitoring. Love your offer to talk but she prefers to keep it strictly a family matter so got to respect that. I'm 100% positive I don't have to advise you but on this but give your gal lots of loving, encouragement, and those little things that uplifts her spirit and fight. I kept telling my wife she'd be OK because that dayum cancer just didn't know who it was messing with. Made her snarl and visualize beating the heck out of it. Really hope your gal does the same.
Click to expand...
Last night she told me that she wanted us to renew our wedding vows. We've been together 17 years and have been married. As soon as she starts feeling a little better I plan on surprising her with a small ceremony. These new chemo drugs are kicking her but at the moment but even between the pain and vomiting she's keeping a positive outlook. She told me this morning. I'm going to see my kids grow up and I'm not leaving you alone.

It's tearing my guts out to watch her suffer like this but she's pushing forward. I'm by her side as I'm typing this and ain't going anywhere. I have my breakdown moments from time to time but I don't let her see them. I've got to keep being her rock. She's the love of my life brother. She's my lover, the mother of my children and my sweetest friend. I'm a lucky man to have her.
 
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#57
#57
dduncan4163 said:
Last night she told me that she wanted us to renew our wedding vows. We've been together 17 years and have been married. As soon as she starts feeling a little better I plan on surprising her with a small ceremony. These new chemo drugs are kicking her but at the moment but even between the pain and vomiting she's keeping a positive outlook. She told me this morning. I'm going to see my kids grow up and I'm not leaving you alone.

It's tearing my guts out to watch her suffer like this but she's pushing forward. I'm by her side as I'm typing this and ain't going anywhere. I have my breakdown moments from time to time but I don't let her see them. I've got to keep being her rock. She's the love of my life brother. She's my lover, the mother of my children and my sweetest friend. I'm a lucky man to have her.
Click to expand...

There is a new drug out now that is very expensive but insurance does cover it. Your wife may be on but if she isn't you need to ask your doctor about. It is a shot that greatly reduces or completely eliminates mucositis in the mouth and throat. I don't know the name of it off the top of my head but my wife has been on it for her last four cycles of chemo and didn't get mucositis. She is on the same chemo regimen as childhood leukemia patients
 
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#58
#58
landscapingvol said:
I know how you feel DD and know what you are going through but she can beat it. Everybody reacts differently to treatments and the worst thing you can do is to Google diagnose. I have been guilty of that myself. My wife is currently undergoing 5 days of chemo treatments a week every three weeks for the last 4 months. I only get to see her about once a month. She begins radiation next week. It sucks; cancer sucks but they have really improved the way treatments are administered and their success rates. I hope and pray that your wife finds heeling. I hope you find peace as well. I haven't found mine yet but I believe I will someday.
Click to expand...
I'm so sorry brother just PM if you want to talk and I'll send you my number. I messed up and let myself Google and seeing the outlook or a spinal relapse gutted me and sent me into a panic attack. I shouldn't have done it it was so damn stupid but after thinking some more on it I realized two things.

1. She's already overcome huge odds to get to were she is now.
2. The odds may be against her but a few still find a way beat this. It can and has been done so that's the hope I can latch onto right there.

I couldn't even begin to imagine how hard it must be only getting to see her so little. That's an entire different level of pain brother. I'm lucky that as of right now she only has to stay in the hospital a few days each moth. They let her come home after her spinal taps.

I know what you mean about not having peace. It's impossible to have peace when your partner in life is suffering. I can relate so much and once again if you'd like to talk maybe we could help each other. Just let me know
 
#59
#59
dduncan4163 said:
I'm so sorry brother just PM if you want to talk and I'll send you my number. I messed up and let myself Google and seeing the outlook or a spinal relapse gutted me and sent me into a panic attack. I shouldn't have done it it was so damn stupid but after thinking some more on it I realized two things.

1. She's already overcome huge odds to get to were she is now.
2. The odds may be against her but a few still find a way beat this. It can and has been done so that's the hope I can latch onto right there.

I couldn't even begin to imagine how hard it must be only getting to see her so little. That's an entire different level of pain brother. I'm lucky that as of right now she only has to stay in the hospital a few days each moth. They let her come home after her spinal taps.

I know what you mean about not having peace. It's impossible to have peace when your partner in life is suffering. I can relate so much and once again if you'd like to talk maybe we could help each other. Just let me know
Click to expand...

Thanks good sir! I will be praying for you!
 
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#60
#60
dduncan4163 said:
Last night she told me that she wanted us to renew our wedding vows. We've been together 17 years and have been married. As soon as she starts feeling a little better I plan on surprising her with a small ceremony. These new chemo drugs are kicking her but at the moment but even between the pain and vomiting she's keeping a positive outlook. She told me this morning. I'm going to see my kids grow up and I'm not leaving you alone.

It's tearing my guts out to watch her suffer like this but she's pushing forward. I'm by her side as I'm typing this and ain't going anywhere. I have my breakdown moments from time to time but I don't let her see them. I've got to keep being her rock. She's the love of my life brother. She's my lover, the mother of my children and my sweetest friend. I'm a lucky man to have her.
Click to expand...

Hear you loud and clear. Love her attitude and she got the right guy with you for sure. It's going to be hard, very hard, but believe without a doubt between the two of you, you're going to kick this leukemia's rearend. Even on your worst days, believe it. If you practice a faith, bring it to bear. And don't overlook prayer time for yourself cause like you say, you have to be her rock. And know that some of us here on VN are or have been where you are now.
 
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#62
#62
Asking that the Lord Jesus will heal Laura right now and provide the exact shade of wisdom needed to the Doctors. May He also pour out His Peace and Grace to Laura , you Dennis and your son. You are not alone.
 
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#64
#64
I wish I had the words to make your situation better but I don't... Having lost my older sister to cancer on May 26, 2010, I know of the highs and lows of this struggle. You just have to keep up the fight, try as much as possible to maintain a positive outlook and cherish every day you have with the ones you love. I wish you and your wife the very best. Sorry you are having to deal with this.
 
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#65
#65
My wife’s name is Laura as well. I cannot imagine what you and your family are going through. I’ll certainly keep you guys in my prayers, that she’ll overcome this.
 
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#72
#72
landscapingvol said:
I know how you feel DD and know what you are going through but she can beat it. Everybody reacts differently to treatments and the worst thing you can do is to Google diagnose. I have been guilty of that myself. My wife is currently undergoing 5 days of chemo treatments a week every three weeks for the last 4 months. I only get to see her about once a month. She begins radiation next week. It sucks; cancer sucks but they have really improved the way treatments are administered and their success rates. I hope and pray that your wife finds heeling. I hope you find peace as well. I haven't found mine yet but I believe I will someday.
Click to expand...
I'm so sorry brother just PM if you want to talk and I'll send you my number. I messed up and let myself Google and seeing the outlook or a spinal relapse gutted me and sent me into a panic attack. I shouldn't have done it it was so damn stupid but after thinking some more on it I realized two things.

1. She's already overcome huge odds to get to were she is now.
2. The odds may be against her but a few still find a way beat this. It can and has been done so that's the hope I can latch onto right there.

I couldn't even begin to imagine how hard it must be only getting to see her so little. That's an entire different level of pain brother. I'm lucky that as of right now she only has to stay in the hospital a few days each moth. They let her come home after her spinal taps.

I know what you mean about not having peace. It's impossible to have peace when your partner in life is suffering. I can relate so much and once again if you'd like to talk maybe we could help each other. Just let me know
landscapingvol said:
There is a new drug out now that is very expensive but insurance does cover it. Your wife may be on but if she isn't you need to ask your doctor about. It is a shot that greatly reduces or completely eliminates mucositis in the mouth and throat. I don't know the name of it off the top of my head but my wife has been on it for her last four cycles of chemo and didn't get mucositis. She is on the same chemo regimen as childhood leukemia patients
Click to expand...
Thanks for the info. I will look into it. So far she's not had too many mouth sores. She does get them in her nose those. So far with this chemo cocktail she's been bad nauseous and the Zofran and Promethizene has barely helped. She's also had bad back and hip pain. They got her on some stout pain killers and she doesn't like taking them because she's scared of getting addicted. I told her she needs to take them regularly because when that pain cranks up it causes her BP to spike. In all honestly if I knew her Oncologists didn't mind I'd get her some Cannabis. That could take out her nausea and pain
 
#73
#73
BowlBrother85 said:
I wish I had the words to make your situation better but I don't... Having lost my older sister to cancer on May 26, 2010, I know of the highs and lows of this struggle. You just have to keep up the fight, try as much as possible to maintain a positive outlook and cherish every day you have with the ones you love. I wish you and your wife the very best. Sorry you are having to deal with this.
Click to expand...
Truly sorry for your loss brother.
 
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#75
#75
I am sorry to read about this setback. Prayers sent for strength to get through this. Wish there was more I could do but your story inspires me to see what love is all about.
 
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