Been a minute, just because it's been a roller coaster again, but figured I'd say something. I'd mentioned the neobladder, but after talking with other drs, the guy in California said it's not worth the risk, because it's still her intestine. That is the issue, so they don't feel like doing a major surgery to change it would really help at all. We even reached out asking mayo their opinion, and they agreed. California dr wants to do the transplant for her, but won't unless she's infection free, for a while, and that's the problem. Mayo in rochester said they're willing to try to help. They actually want us to come bavk for more tests, particularly their infectious disease Dr's. She's gonna ask if we can do the tests here, but we'll go there if they want. Her Dr here basically told us a couple weeks ago that she can't keep giving her antibiotics. She agreed to do through christmas, but said after that we'd just have to wait until She's in the hospital basically. She cried in the office, said she's just ready to die on the way home. I've had to pretty much force her to communicate with mayo, she's just tired. Idk what will happen, I still believe there's an answer somewhere, but there is fear that I won’t have her much longer. Still, she's strong in her faith, she's just at the point that she feels it's not for her to get better. She's having a hard time feeling better now, and she's been on treatment. It's gut wrenching, just pray for her, particularly that she'll keep fighting.
