Hey, I Might NOT Be Dying

#802
#802
Weezer said:
So I've had cirrhosis of the liver for some time now. I'm on the liver transplant list at Vanderbilt, but unfortunately, no matches yet. I went for a routine visit last Tuesday. The doctor said I have about a year to live. He said either they find me a liver, or, as he put it, Heaven. Being religious, I look at it as whatever happens is God's will. But I'd be lying if I said this hasn't created a high level of anxiety within me. I'm not really scared, which is odd, I just find myself highly nervous.

I'm hoping talking about it might help those nerves, but I'm not sure if it will work or not.

For the record, I have the NASH form of cirrhosis, meaning it wasn't caused by alcohol. I had a fatty liver that turned into cirrhosis.

One other note, my dad died less than a year ago from liver cancer, which started out as NASH before turning into cancer.
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Weezer, I pray your health improves and you can keep the clock ticking, but let's face it, ALL of us are dying. Some babes die in the crib and some folk live to be cranky and creaky old wrinkled prunes. Why? I don't know.

I think some of the best words I ever heard for this situation came from a movie called Braveheart:

Every man dies, not every man lives.

So whatever time you got to go, live it to the hilt with everything you got. Since you are a Christian, make sure your remaining days are spent doing things God's ways and not just what some preacher tells you are God's ways. Do that ,and I guarantee that nervousness you are feeling will be replaced with that peace that passes understanding.

May God be with you and keep you.
 
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#803
#803
Down to 214lbs. Weird to think that fluid had me just over 300lbs before surgery. Five months after the transplant, I'm 86+ pounds lighter. Need to build my muscles back up.
 
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#805
#805
Weezer said:
Down to 214lbs. Weird to think that fluid had me just over 300lbs before surgery. Five months after the transplant, I'm 86+ pounds lighter. Need to build my muscles back up.
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Slow and steady
 
#806
#806
vollygirl said:
Weezer that is crazy. How are you feeling at this point?
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Feeling feeble. Stomach problems are still haunting me, which makes getting around very difficult. Some days, my stomach hurts so bad I can't walk. Just feels like my gut is all twisted. Go back to Vandy next week for an EGD, so hopefully they find out what's going on.
 
#807
#807
Weezer said:
Feeling feeble. Stomach problems are still haunting me, which makes getting around very difficult. Some days, my stomach hurts so bad I can't walk. Just feels like my gut is all twisted. Go back to Vandy next week for an EGD, so hopefully they find out what's going on.
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Hope they give you some answers.

I wish your recovery was a smoother, faster process.
 
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#808
#808
Wish recovery was smoother as well, but I'm alive, so I'm thankful just for that. I'll get where I need to be eventually, it's just a matter of time. Lol, I've never been a patient person, so I'll just take it as God's way of teaching me. I need to be a better student. :)
 
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#811
#811
Weezer said:
Wish recovery was smoother as well, but I'm alive, so I'm thankful just for that. I'll get where I need to be eventually, it's just a matter of time. Lol, I've never been a patient person, so I'll just take it as God's way of teaching me. I need to be a better student. :)
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Thoughts and prayers, Weezer. Still praying for you every day.🙏🙏🙏
 
#812
#812
Ya'll would literally would not believe my last week. I broke my back. Honestly, I did. Last week, I got up to go to the bath room. No sooner had I stepped through the bath room door and my world started to spin. Fell pretty hard. Now I have a compression fracture of my L1,L2 vertebrae. Stuck in the hospital, again, hurting like crazy. I'm beginning to think I'm cursed.
 
#815
#815
Do they know what caused the dizziness ? Same thing happened to my mom a few years ago -- the Dr never said anything about the dizziness to us - just chopped it up to old age, but you arent over 70 are you ?
 
#816
#816
I'm 43. They still haven't figured out the dizziness thing for sure, but they're currently chocking it up to ortho-static- hypotension(probably butchered the spelling). It's where your blood pressure suddenly drops when you're on your feet.
 
#818
#818
Right now, I'd settle for pain med that actually worked. I hurt bad enough I want to curse profusely. Fairly certain Freak would no appreciate the sailor language I know.
 
#819
#819
Weezer said:
Right now, I'd settle for pain med that actually worked. I hurt bad enough I want to curse profusely. Fairly certain Freak would no appreciate the sailor language I know.
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Sorry man.
 
#820
#820
Weezer said:
I'm 43. They still haven't figured out the dizziness thing for sure, but they're currently chocking it up to ortho-static- hypotension(probably butchered the spelling). It's where your blood pressure suddenly drops when you're on your feet.
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I’m sure they’ve checked, but how is your H&H (blood counts)? Sometimes a low blood count or anemia can cause that.

Just know you mentioned your stomach, last thing I want to hear is that you have a GI bleed or something too, bud.
 
#822
#822
xJesusx56 said:
I’m sure they’ve checked, but how is your H&H (blood counts)? Sometimes a low blood count or anemia can cause that.

Just know you mentioned your stomach, last thing I want to hear is that you have a GI bleed or something too, bud.
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Was supposed to return to Nashville this week for an upper and lower GI scope to check things out, but travelling isn't currently an option. I tend to have fluctuating blood numbers that they can't explain, so they want to check for any possible bleeds, but my body isn't cooperating.
 
#823
#823
Weezer, you’re practically a modern day Job at this point. I’m really sorry for all that you’re having to endure. I pray that God heals you and puts all this behind you.
 
#824
#824
Hope you have the best Thanksgiving possible Weezer. Hurry and get better so we can fight again!
 
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