Requesting your prayers and support

#102
#102
You're in my thoughts. Just know that the disorder my be rare but you guys are not alone and people face more than this everyday all over the world. I say that because I imagine that this feels like a lonely time for your family and in times like this I like to think about all the hardships others face all over the world everyday.
 
#104
#104
Prayers sent from a poor sinner for you and your whole family.
May you find God's peace in this difficult time.
 
#107
#107
fade route said:
I've hesitated to post this and I definitely don't want to be a wet blanket in the midst of the great news on Shoop, but I would appreciate your prayers. Our family received word over the holiday break that our 14 year old daughter has been diagnosed with a very rare genetic disorder. So rare, in fact, that there are only 65 known cases in the entire world. More specifically, she has a mutation in her COL4A-1 gene that leaves her vulnerable to strokes and intracranial bleeds from weak and fragile small vessels. There's much more to it, but you can google it to get more info if you wish. She will have to have several lifestyle modifications to protect her small vessels in her eyes and more importantly her brain, including giving up cheerleading and some other activities. Any jarring or hits to the head can have severe, life threatening consequences. It's going to be a long road ahead, but our faith in Christ sustains us, and I ask that you pray for her protection and for my wife and I as we learn how to help her manage a new life with this diagnosis. Thank you VN - you guys are the best.
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Prayers sent
 
#113
#113
fade route said:
I've hesitated to post this and I definitely don't want to be a wet blanket in the midst of the great news on Shoop, but I would appreciate your prayers. Our family received word over the holiday break that our 14 year old daughter has been diagnosed with a very rare genetic disorder. So rare, in fact, that there are only 65 known cases in the entire world. More specifically, she has a mutation in her COL4A-1 gene that leaves her vulnerable to strokes and intracranial bleeds from weak and fragile small vessels. There's much more to it, but you can google it to get more info if you wish. She will have to have several lifestyle modifications to protect her small vessels in her eyes and more importantly her brain, including giving up cheerleading and some other activities. Any jarring or hits to the head can have severe, life threatening consequences. It's going to be a long road ahead, but our faith in Christ sustains us, and I ask that you pray for her protection and for my wife and I as we learn how to help her manage a new life with this diagnosis. Thank you VN - you guys are the best.
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Keeping you and your family in my thoughts, buddy.
 
#118
#118
Praying for her health, Fade, and for strength throughout the family as you get this figured out.
 
#121
#121
Grateful they found it and can watch. God's blessings on her and you all. Prayer is the answer.
 
#122
#122
Adding our prayers Fade.

Jeremiah 29:11
"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."
 
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#123
#123
fade route said:
I've hesitated to post this and I definitely don't want to be a wet blanket in the midst of the great news on Shoop, but I would appreciate your prayers. Our family received word over the holiday break that our 14 year old daughter has been diagnosed with a very rare genetic disorder. So rare, in fact, that there are only 65 known cases in the entire world. More specifically, she has a mutation in her COL4A-1 gene that leaves her vulnerable to strokes and intracranial bleeds from weak and fragile small vessels. There's much more to it, but you can google it to get more info if you wish. She will have to have several lifestyle modifications to protect her small vessels in her eyes and more importantly her brain, including giving up cheerleading and some other activities. Any jarring or hits to the head can have severe, life threatening consequences. It's going to be a long road ahead, but our faith in Christ sustains us, and I ask that you pray for her protection and for my wife and I as we learn how to help her manage a new life with this diagnosis. Thank you VN - you guys are the best.
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Prayers going out for her and your family.
 
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