Requesting your prayers and support

#127
#127
Prayers for you and your daughter. My daughter was diagnosed with a rare genetic disorder too when she was 5. The first 6 months after diagnosis were the scariest. Once we grieved and got educated, it became manageable and now I don't even think about it much. "The Lord will fight for you; you need only to be still." Exodus 14:14. And, Joshua 1:9, "Be strong and courageous. Do not be terrified; do not be discoraged, for the Lord your God will be with you wherever you go."


And finally, I always encourage my daughter to read Psalm 139 and know in her heart that she is fearfully and wonderfully made. God doesn't make mistakes, so even as hard as it is to adjust to right now, He's going to give her strength and a purpose that no one else is capable of fulfilling.
 
  • Like
Reactions: 1 person
#130
#130
Fade never hesitate to ask for prayers because without the Lord we are nothing. Praying for her a miracle and the family as they deal and cope with this.

God Bless!

:eek:k:

Tennesseeduke
 
#134
#134
Wonderful blessings to you and your family, fade. May you find comfort and peace when you need them most.

Most sincere of prayers and warmest thoughts sent.
 
#141
#141
fade route said:
I've hesitated to post this and I definitely don't want to be a wet blanket in the midst of the great news on Shoop, but I would appreciate your prayers. Our family received word over the holiday break that our 14 year old daughter has been diagnosed with a very rare genetic disorder. So rare, in fact, that there are only 65 known cases in the entire world. More specifically, she has a mutation in her COL4A-1 gene that leaves her vulnerable to strokes and intracranial bleeds from weak and fragile small vessels. There's much more to it, but you can google it to get more info if you wish. She will have to have several lifestyle modifications to protect her small vessels in her eyes and more importantly her brain, including giving up cheerleading and some other activities. Any jarring or hits to the head can have severe, life threatening consequences. It's going to be a long road ahead, but our faith in Christ sustains us, and I ask that you pray for her protection and for my wife and I as we learn how to help her manage a new life with this diagnosis. Thank you VN - you guys are the best.
Click to expand...

Fade..... much love and prayers.. I have zero power and zero pull, but if you ever just wanna chat, I'll gladly shoot the shyte with you and try to keep your spirits up.

Kwylo76@outlook.com if you wanna hit me up and chat.

Finding this is a blessing, whether it seems like it or not. Knowing gives you the power to adjust. Gives you the chance to keep your baby girl safe as possible.

I'm here if you need to talk


Keith
 
#142
#142
Prayers going up for ya. Humans, and esp Vol fans, are a resilient species...your daughter and family will be stronger for it. God has a plan even if it doesn't always coincide with ours.
 
#144
#144
God doesn't waste our suffering. His grace is sufficient in all circumstances. God has already used you and your family to influence me just by what you've already said.
 
#146
#146
Sorry to hear that. Our children are our greatest treasure and our greatest worry. As the father of a son with autism and cerebral palsy, I can certainly empathize with you. Will pray for you and your family.
 
#147
#147
Praying for y'all in this struggle. Really cool to see this at the top of the football forum threads. Nothing like the volnation family.
 
#149
#149
Sorry to read this and your family is in our prayers. You might check the NIH Rare Disease initiative to see if anyone there is doing research on this disease.
 
New posts
You must log in or register to reply here.

VN Store



Back
Top