There’s no doubt in Beam’s mind that his pitching career is what it is today — likely headed for a prominent draft spot in 2024, among other things — in large part because of his 14-year-old sister Carlee.
“I honestly wouldn’t be here, no way, if not for her,” said Beam, 19. “She’s actually done a lot for me in my life. I had to mature quicker because I had to help my parents with a lot of things. You’re helping take your sister to the bathroom and things like that, things most 10-year-olds and young teenagers don’t have to do or think about. You start understanding about not taking things for granted in life. Then you see how happy she is every day, it kind of puts in perspective that you can’t let life drag you down because something happened or because you’re a little different.”
Spinal Muscular Atrophy (SMA) is a genetic disease affecting the central nervous system, in which muscles don’t receive signals from motor neurons and don’t develop as a result. It’s the most common genetic cause of death among infants. There are four types, the third and fourth of which don’t have an extensive impact on quality of life. Type I, according to the National Institute of Neurological Disorders and Stroke, means death by respiratory failure before age 2 in the “vast majority” of those affected.
Children with Type II are unable to walk and, per the Institute, “life expectancy is reduced but most individuals live into adolescence or young adulthood.” SMA Type II is what 2-year-old Carlee Beam was diagnosed with on April 19, 2010, after a few months of doctors trying to figure out why she was delayed physically. That’s when everything changed for Kelli, husband Jason and their 7-year-old son Drew.
“I didn’t really grasp what it meant at time,” Drew said, but in the years ahead he would come to understand it, start his own lawn business at 12, help take care of Carlee and mature in ways that aren’t required of many kids that age.
“Your brain hurts, your heart hurts and you just don’t know,” Kelli said. “If you look up SMA on the internet, it’s not the most encouraging news you’ll ever see. We had no idea about any of it, we had never heard of this in our lives. But from that day on we’ve said, ‘You know what? We’re gonna keep living no matter what, we’re gonna keep doing our thing.’ So we have, and Carlee has. We follow our kids around, we love them big, we let them do whatever they can do to chase their dreams.”
Carlee’s revolve around cheerleading. She was the manager for her middle school cheer team and will do the same as a freshman next school year at Blackman High. She helps Kelli teach in the kids ministry at Fellowship Bible Church, and gives them rides on the wheelchair that has been part of her life for as long as she can remember.
She has become popular enough around Lindsey Nelson Stadium that the ushers know her by name, and the same is true of the Vols. Drew Gilbert, Cortland Lawson and Zander Sechrist are among the players with purple “Cure SMA” bracelets. All of the players on the team will eventually take a picture with Carlee, if her in-progress plan is fulfilled. Vitello’s parents have become close with her. When Vitello called the Beams before UT’s March road series against
Ole Miss, it was to talk about their daughter, not their son.
“He was concerned about making sure she had a great experience in their stadium. He was like, ‘We got it, I’ll take care of it,’” Kelli said. “For him to call and just care enough about that, it meant a lot to us. That’s this team and these families, they love each other.”