Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)

#4,404
#4,404
volwindy said:
Well if she wants to try, then why not? My mom has already told us if she gets cancer, no treatment for her, just give her all the chocolate desserts she can eat and photo albums to look at.
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My mom did 2 treatments then said "no more Id rather die".

And she did.
 
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#4,406
#4,406
Behr said:
My mom did 2 treatments then said "no more Id rather die".

And she did.
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It's definitely a tough situation to have to be in. I've known people who had treatment and done well. I've also known a few like your mom, only took a couple and didn't want anymore. I just wish there were better treatment, or options for it.
 
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#4,408
#4,408
joevol33 said:
It's definitely a tough situation to have to be in. I've known people who had treatment and done well. I've also known a few like your mom, only took a couple and didn't want anymore. I just wish there were better treatment, or options for it.
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Yeah, Im sure there's a lot of different circumstances to consider with every case individually. My mom was dealing with some other stuff too and ......well, I think she was ready anyway.

I just hope and pray for the best with Tiffany's mom whatever she decides. Gotta let them decide imo. Last thing my mom needed was us trying to talk her into to doing something she didn't want to do just because of selfish reasons.

Dammit. That chits hard on everybody.
 
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#4,411
#4,411
volwindy said:
Is that what she wanted or were you thinking of what she wouldn't eat much of for you to have leftovers????
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I would never 👀🤣. Other than fast food, it's that, Long Horn, or Texas Roadhouse right here close. She wasn't feeling like a full steak dinner, so she got french toast and some steak tips. She got the tips to try to eat some protein, but knowing I'd take care of them 🤣
 
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#4,420
#4,420
@VolNExile this is from what her mom had done today. The Dr told her that the cancer was eating at her bone. Is that was the erosion part is? We're just curious, if you know.received_919994023188062.jpeg
 
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#4,421
#4,421
The California Dr has still been talking with her. She just called and said he'd called her. It's not that they don't want to do the transplant, or help, they're just concerned that she'll reject it because of everything. He did say he's talking with another Dr who does reconstructive surgery for stuff like this, and there is a chance he might could help her. They'd have to move her stoma, in hopes that it'd drain correctly from the other side. He wants all of her medical records. I told her IDK if it'd be a good idea, but she's definitely tired of going through all of this. That's what she said, it's not that she wants any kind of surgery, she's just tired of feeling this way. I get it, I just wish it'd work the proper way right now.
 
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#4,422
#4,422
joevol33 said:
Her mom's Drs have moved her surgery to tomorrow morning at 5:30. They wanted to do a full checkup on her today to make sure she will be able to. Dr told her that the cancer is eating away at some of her bones, so they want to make sure she can handle the surgery. Which confuses me, if it's that bad, why suffer her through it? They told her the radiation is to try and shrink the biggest tumor in her leg for pain control. It's the only place they're even going to try radiation. If her bone is that bad, why try putting a rod. IDK, I admit I know nothing about this.
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Is she able to get around now at all ? - to the toilet and back, to the window to sit, etc. If so, and they can bridge that spot with a rod (IM nail?), it could keep her mobile. Being bedridden for the next six months sounds even more awful than her situation now. It's not easy though, and I would guess that she'll probably have some PT to get her up and about afterwards.

(My mom has pretty severe osteoporosis (soft/"rotten" bones) and broke her right femur after falling at Memphis Audubon golf course, sneaking around at dusk practicing her pitch/putt game. Luckily the groundskeeper found her on his night rounds. There were literally hundreds of bone fragments besides the main fracture; it just disintegrated. She had an IM nail put in and 25-30 years later is still trundling around on it. <- btw, that's an example of a pathological fracture, rather than a traumatic fracture. Yes, she tripped and fell, but that would not have broken a thigh bone in a person with normal bones.)
 
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#4,423
#4,423
VolNExile said:
Is she able to get around now at all ? - to the toilet and back, to the window to sit, etc. If so, and they can bridge that spot with a rod (IM nail?), it could keep her mobile. Being bedridden for the next six months sounds even more awful than her situation now. It's not easy though, and I would guess that she'll probably have some PT to get her up and about afterwards.

(My mom has pretty severe osteoporosis (soft/"rotten" bones) and broke her right femur after falling at Memphis Audubon golf course, sneaking around at dusk practicing her pitch/putt game. Luckily the groundskeeper found her on his night rounds. There were literally hundreds of bone fragments besides the main fracture; it just disintegrated. She had an IM nail put in and 25-30 years later is still trundling around on it. <- btw, that's an example of a pathological fracture, rather than a traumatic fracture. Yes, she tripped and fell, but that would not have broken a thigh bone in a person with normal bones.)
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She can't walk without help. IDK if that's from the femur and hip issues, or just weak. Dr did say if they did the radiation without putting a rod in, that it'd shatter the bone in the area.
 
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#4,424
#4,424
joevol33 said:
@VolNExile this is from what her mom had done today. The Dr told her that the cancer was eating at her bone. Is that was the erosion part is? We're just curious, if you know.View attachment 618302
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Yes, erosion means wearing away. In her case, it's her bone cortex, which is the outer surface of bones - tough, strong, and weight-bearing, while the inner bone has the blood vessels, nerves, marrow, etc. Bones are sort of hollow, with the strong, "bony" part on the outside and spongy on the inside where all the metabolic business of bone goes on - blood vessels for oxygen and nutrients, nerves, and bone marrow to create new blood cells.

A "lytic lesion" is an actual hole in the bone, resulting from disease, generally different forms of cancer (either primary - originating in the bone - or metastatic - originating elsewhere, and spreading to bone tissue.) The hard bony tissue has been eaten away in spots.

In the last part, where they compare today's x-rays to (today's?) and earlier CT scans, they say that there ARE some non-displaced fractures around the lytic lesion, but no displaced fracture. This means that the bone is breaking down (= is cracked; broken) in spots around the tumor site, but the bone itself is still straight, not displaced like we usually think of a broken bone with some horrendous zigzag. It also notes that the lesion (bone tumor) has grown since whenever the films were taken in December, so 1-2 months ago.
 
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#4,425
#4,425
VolNExile said:
Yes, erosion means wearing away. In her case, it's her bone cortex, which is the outer surface of bones - tough, strong, and weight-bearing, while the inner bone has the blood vessels, nerves, marrow, etc. Bones are sort of hollow, with the strong, "bony" part on the outside and spongy on the inside where all the metabolic business of bone goes on - blood vessels for oxygen and nutrients, nerves, and bone marrow to create new blood cells.

A "lytic lesion" is an actual hole in the bone, resulting from disease, generally different forms of cancer (either primary - originating in the bone - or metastatic - originating elsewhere, and spreading to bone tissue. The hard bony tissue has been eaten away in spots.

In the last part, where they compare today's x-rays to (today's?) and earlier CT scans, they say that there ARE some non-displaced fractures around the lytic lesion, but no displaced fracture. This means that the bone is breaking down (= is cracked; broken) in spots around the tumor site, but the bone itself is still straight, not displaced like we usually think of a broken bone with some horrendous zigzag. It also notes that the lesion (bone tumor) has grown since whenever the films were taken in December, so 1-2 months ago.
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Thanks. We were kinda thinking along those lines, and assumed that's what the Dr was getting at by saying "the cancer is eating up your bones". Hopefully the surgery tomorrow can help her for a while.
 
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