Thanks for asking and thinking of us. I appreciate it much more than you and VN know
.
It's been up and down. Unfortunately, confusion has kinda become the new norm. It's like there's always a little bit there even on good days but as long as it's just a little bit it's manageable. He had a bad fall Sunday and we were all convinced (including the nurse that came out to see him) that his arm was broken but X-ray showed no fracture. That said, he had so much swelling (I have never seen an arm look like his that wasn't broken) that our regular nurse said that we should still monitor it because it might still be broken but the inflammation and swelling prevented anything being seen.
My Mom said that something similar happened with her Aunt many years ago where she went in and told the hospital she thought her hip was broken, they x-rayed and said they saw nothing and sent her home and she came back a few days later because it was still hurting and that time the x-ray showed the fracture. That was years ago but x-rays really haven't changed beyond how much faster they can do them.
His nurse is worried that the confusion not going away could be the kidney cancer spreading to his brain (mets) but I kinda feel like it's just his the hepatic encephalopathy and possibly the addition of vascular dementia. IDK, I feel like the kidney cancer is gone - back when it was treated UT had to take his case before a tumor board because the only treatment option was cryoablative (freezing the tumor off) as he'd never have survived surgery which is what they'd have done for anyone else. But I remember that even though his tumor was bigger than cryoablative is supposed to be used for his was on top of the kidney just hanging off and was in a pretty great spot for treatment and they thought that they got it all. Of course, I could be wrong on that as there's so much symptom overlap. And the confusion, falls, and speech problems would fit both HE and mets. *But* hopefully, I'm right.
I'm saving to get him a Nintendo Switch to try and help him a little bit with confusion and cognition since studies have shown that playing 30 mins a day for at least 2 weeks has helped not only seniors with dementia but also people with hepatic encephalopathy, specifically. It might not give him huge gains but any little bit we can get seems worth it and I think it would be good for him to actively engage his mind in something. Watching shows and movies is a passive activity and he needs to force his brain to actively engage which can be hard to do when you're sick and can't get out often.