Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)

Good friend I went to school with messaged me earlier. She reached out to another friend of ours who lives outside of LA, she's been off social media for a while. They've gotten to know Tiffany over the years, and like her more than me now 🤣. Anyway, my friend who lives out there, her and her husband are well off, and they own a car rental place. She told me anything I need at all to tell her, and if I want a car while we're there it's mine. I'm not going to of course, but just thought it was nice of both of them. It is a little nice having her out there, in case there was a situation. She's begged us to come visit for years, I'd say we'll be seeing her at some point. I do have a cousin fairly close in Arizona if needed also. Just made me smile at the one thinking about it, and letting her know we were coming.
Yes, if she's offering you the use of a car in LA for free, she definitely likes Tiffany better than you now!

j/k, j/k - it's so good to have friends.
 
Oh yeah, little update on her physically. Physical therapy came yesterday, they don't want her off the walker yet, but she does. So they let her try, and walked with her a little without the walker. Just around the living room, but she was as happy.
 
Poor guy at the infusion center earlier had a bad reaction while Tiffany was there. He coded, and went into a seizure, they gave him an EpiPen and got him back. Scared Tiffany for him, and her, she was taking the same thing.
Any more word from the Cali team about timing?
 
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Not yet. She's ready, she's had a rough day, especially that infusion, it makes her sick. We got home and she was talking about wishing they'd hurry, said she's tired of living like this. Makes me sad
Well, endless prayers for a smooth transition when it comes! I know that there are a ton of moving parts in this thing. 🧡❤️🧡 (One red heart for your Georgia gal!0
 
Not yet. She's ready, she's had a rough day, especially that infusion, it makes her sick. We got home and she was talking about wishing they'd hurry, said she's tired of living like this. Makes me sad
Look at the upside guys, SHE'S READY! Could still be in that nervous doubtful phase.
 
I'm going to vent in the nervous/doubtful stage. Not being negative, but it's normal for your mind to think about all possibilities, even the bad. I see her every day, so I completely understand her wanting to do this. Heck, I would if I suffered like she does, but I also see the weakness in her body. I've also seen her almost due, so my mind wonders about the reality of how risky this is. That leads to questions of what if. What if it goes bad, and she doesn't make it? You have to deal with the outcome if it happens, as in getting her back home from out there. The biggest concern, the kids. Do you tell them something like that over the phone with nobody with them (family), or hop on a plane and wait? Then I worry about me, I think the protection mode of a dad would kick in, and keep me halfway calm until I get to them, but what if I do break down out there without them? Sorry, I'm just really nervous, and hate even saying any of that, but it's eating my brain and heart holding it. I don't want to talk to her about it, or anyone really, so I am here. It's not that I don't see miraculous things in this, it's just my human nature. It's risky, we both do understand that, and I do realize there is a chance I come home without her. I'm just going to cherish every second, and spoil her while I can, and hope I can look back and laugh at my fear.
 
I'm going to vent in the nervous/doubtful stage. Not being negative, but it's normal for your mind to think about all possibilities, even the bad. I see her every day, so I completely understand her wanting to do this. Heck, I would if I suffered like she does, but I also see the weakness in her body. I've also seen her almost due, so my mind wonders about the reality of how risky this is. That leads to questions of what if. What if it goes bad, and she doesn't make it? You have to deal with the outcome if it happens, as in getting her back home from out there. The biggest concern, the kids. Do you tell them something like that over the phone with nobody with them (family), or hop on a plane and wait? Then I worry about me, I think the protection mode of a dad would kick in, and keep me halfway calm until I get to them, but what if I do break down out there without them? Sorry, I'm just really nervous, and hate even saying any of that, but it's eating my brain and heart holding it. I don't want to talk to her about it, or anyone really, so I am here. It's not that I don't see miraculous things in this, it's just my human nature. It's risky, we both do understand that, and I do realize there is a chance I come home without her. I'm just going to cherish every second, and spoil her while I can, and hope I can look back and laugh at my fear.
Good plan, Joe!
 
I'm going to vent in the nervous/doubtful stage. Not being negative, but it's normal for your mind to think about all possibilities, even the bad. I see her every day, so I completely understand her wanting to do this. Heck, I would if I suffered like she does, but I also see the weakness in her body. I've also seen her almost due, so my mind wonders about the reality of how risky this is. That leads to questions of what if. What if it goes bad, and she doesn't make it? You have to deal with the outcome if it happens, as in getting her back home from out there. The biggest concern, the kids. Do you tell them something like that over the phone with nobody with them (family), or hop on a plane and wait? Then I worry about me, I think the protection mode of a dad would kick in, and keep me halfway calm until I get to them, but what if I do break down out there without them? Sorry, I'm just really nervous, and hate even saying any of that, but it's eating my brain and heart holding it. I don't want to talk to her about it, or anyone really, so I am here. It's not that I don't see miraculous things in this, it's just my human nature. It's risky, we both do understand that, and I do realize there is a chance I come home without her. I'm just going to cherish every second, and spoil her while I can, and hope I can look back and laugh at my fear.
If I could have, I would have come to sit and pray with you, Joe. I was asleep last night at 9pm.
 
I'm going to vent in the nervous/doubtful stage. Not being negative, but it's normal for your mind to think about all possibilities, even the bad. I see her every day, so I completely understand her wanting to do this. Heck, I would if I suffered like she does, but I also see the weakness in her body. I've also seen her almost due, so my mind wonders about the reality of how risky this is. That leads to questions of what if. What if it goes bad, and she doesn't make it? You have to deal with the outcome if it happens, as in getting her back home from out there. The biggest concern, the kids. Do you tell them something like that over the phone with nobody with them (family), or hop on a plane and wait? Then I worry about me, I think the protection mode of a dad would kick in, and keep me halfway calm until I get to them, but what if I do break down out there without them? Sorry, I'm just really nervous, and hate even saying any of that, but it's eating my brain and heart holding it. I don't want to talk to her about it, or anyone really, so I am here. It's not that I don't see miraculous things in this, it's just my human nature. It's risky, we both do understand that, and I do realize there is a chance I come home without her. I'm just going to cherish every second, and spoil her while I can, and hope I can look back and laugh at my fear.
For me personally, I have to set the bags down sometimes and empty them out, so to speak. Like what you are doing here. When I have more questions than answers, when there is more unknown than known, the bags get so heavy. And I usually realize later than I should, that I need to set them down for a while, let Jesus do his thing, and then I can pick them back up.

As for your kids, do you guys have access to counselors or therapists? Someone who guides families through this kid of thing? Seems like there would be family support for you guys, including someone the girls could reach out to when they wanted.
 
For me personally, I have to set the bags down sometimes and empty them out, so to speak. Like what you are doing here. When I have more questions than answers, when there is more unknown than known, the bags get so heavy. And I usually realize later than I should, that I need to set them down for a while, let Jesus do his thing, and then I can pick them back up.

As for your kids, do you guys have access to counselors or therapists? Someone who guides families through this kid of thing? Seems like there would be family support for you guys, including someone the girls could reach out to when they wanted.
We have free counseling through my insurance. I don't know if they want that, but I believe I will mention it. They admit they're stressed about it, but they do talk about it, which is good. I don't say anything to them, or her, about stuff I'm afraid of, just tell them I'm concerned as well.
 
@joevol33. who will be staying with Little Bit while you're in Cali?
She'll be staying with some good friends of ours. Their daughters have swim with the girls for years, and we help each other with pick up and stuff. The mom actually brings her home from practice every day right now, and they only live about a mile away.
 

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