SweetasSoda
Captain of the Cheerleaders
- Joined
- Jul 28, 2018
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Goodness, I hate you’re going through all of this! And it’s bringing back so much that happened with Daddy. He was having a heart attack so we called an ambulance. Hospice was angry we didn’t call them first so they dropped him! He was in ICU, and they pretty much demanded we stay with him! With Mama we could only go in every few hours. With him they told they would probably send him to Vanderbilt the next day. So at 1 am I decided to run home for about 4 hours sleep because I knew it would be me that would have to go with him. The nurse called my sister at 5 am to tell her one of us had to get back with him because he kept trying to get up. This after we had spent the day before trying to convince them of the same thing. But it was as if we were irresponsible like you said. Prayers for a better day tomorrow.He almost came home today but there's a snafu with his hospice. They told me to take him to the hospital and said we wouldn't lose service. Well guess what happened? By the time, the hospital found a new one it was too late for the paperwork to go through and so they're keeping him another night.
And FWIW, nothing was wrong. Everything was wrong but the local tells me nope - he's perfect, just his liver. What's worse is that if they'd found something - anything - that would likely have stopped us from getting dropped. It's bad medicine for someone who suffers from a lot of confusion to have his care team switched up like this but bureaucracy overcomes what's right once again. Truthfully, hospices are serving as palliative care because palliative care has been cut to the bone (there's only one in the general area that actually does anything - the rest just use the word in their name but are in reality home health instead). And palliative matters because they do what hospice does but you can go to the hospital (they just pay for less) but like I said there's only one and they don't take our insurance so the best option is out.
Ugh, I'm worn out and frustrated. He was dressed and ready to go and I had to tell him I couldn't take him home. And I also got side eye from the CNA who was upset he took off on his own to the bathroom. She was all 'who cares for him at home?' I said, "I do" and she's all "I see.... well, he could fall..." and I'm thinking "oh honey, I caught every bit of your "I see." I was too tired to pick the fight, especially knowing he had another night. But I wanted to tell her 'when he's in here it's not my job to take care of him. it's yours.'
And it's true, the few days he spends in the hospital are the only time he isn't 100 percent my responsibility. Forgive me for enjoying a break in having to do all the hard work but because I still look young (nary a gray hair) and people take me for 30 at most I get treated like an irresponsible child.